On April 17th of each year, International Hemophilia Day is observed. It is also the birthday of Frank Schnabel, who founded the International Federation of Hemophilia, and a global awareness day for hemophilia (sometimes spelled hemophilia) and related bleeding diseases.
This year, all activities and programs will be virtually held due to the coronavirus epidemic. Since 1989, many communities have joined together to celebrate the continual improvements in treatment while simultaneously bringing attention to, deepening understanding of, and emphasizing the difficulties in providing the general public with acceptable care.
Hemophilia
It is a rare condition in which your blood lacks enough blood-clotting proteins or factors, preventing your blood from clotting correctly. If you have hemophilia, you could bleed for longer than you would if your blood clots properly after an injury.
History of Haemophilia Day
The 17th of April was chosen as the day to honor the birth of the International Federation of Haemophilia's founder, Frank Schnabel when the World Federation of Haemophilia (WFH) founded World Haemophilia Day in 1989.
Haemophilia was really discovered in the 10th century, when people started to pay attention, especially to males, who frequently died from small bleeding accidents. This illness was known at the time as abulcasis. This was not remedied, nevertheless, due to technical limits. Aspirin was used to treat this illness, which was then highly common among royal families and made the condition worse by thinning the blood.
In 1803, Philadelphia physician Dr. John Conrad Otto started researching "bleeders" and came to the conclusion that it is a hereditary disorder passed on to boys from their mothers. Type A and Type B hemophilia genetic disorders were separated into separate groups in 1937. Yet until that point, no suitable cure had been developed.
Significance of Haemophilia Day
It was determined to raise public awareness about this disease and to help people appreciate the importance of giving this significant health issue the attention it deserves. The World Federation of Hemophiliacs (WFM) was founded in the year of 1963 to enhance care and treatment for all hemophiliac patients.
Important Information about Haemophilia
Usually spelled hemophilia, hemophilia is a genetic disease that runs in families. It takes a long time for people with hemophilia to stop bleeding since the disorder affects the body's ability to produce blood clots. Almost no women have hemophilia, a very rare condition.
Theme of Haemophilia Day
International Hemophilia Day is April 17, 2023. Access for All: Prevention of bleeds as the worldwide standard of care is the event's topic this year. Continuing on the topic from the previous year, the community is urged to unite in 2023 to lobby local policymakers and governments for greater access to treatment and care, with a focus on better bleeding management and prevention for all individuals with bleeding disorders (PWBDs). Improving those people's quality of life entails the use of home-based treatment as well as a preventative treatment.
